Posts Tagged ‘privacy’

European Court Says Police Can’t Keep DNA Samples from Innocent People


DNA sampleIn a landmark court case, a European court has ruled that law enforcement agencies can’t keep DNA samples from people who have never been convicted of a crime. In the unanimous judgment, the European Court of Human Rights ruled that keeping the samples was in violation of people’s right to a private life, a protection under the Human Rights Convention [AP].

Its decision, which is binding on all 46 members of the Council of Europe, will have an immediate impact on around 850,000 innocent people whose genetic profiles are stored on the police DNA database in England and Wales [The Economist]. In those parts of the United Kingdom, the police collect a DNA sample from anyone arrested on a “recordable” offense, a category that includes everything from murder to “fraudulently evading bingo duty.” That sample is stored for the rest of the person’s life, even if they’re never convicted of the crime they were arrested for. If the U.K. doesn’t appeal the new ruling, the English and Welsh police will have to immediately destroy the genetic profiles of everyone without a criminal record.

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December 4th, 2008 Tags: , , ,
by Eliza Strickland in Health & Medicine | 3 comments | RSS feed | Trackback >

For the Greater Good, Ten Pioneers Will Post Their Genomes on the Internet


DNA double helix 3Ten intrepid genetic explorers have volunteered to have their genetic information posted on the Internet for anyone’s perusal, along with photographs, their disease histories, allergies, medications, ethnic backgrounds and a trove of other traits, called phenotypes, from food preferences to television viewing habits [The New York Times]. The 10 volunteers are the first participants in the Personal Genomics Project, an endeavor run by Harvard Medical School that hopes to offer free genetic testing to 100,000 people in exchange for their privacy.

The project aims to advance genome research by tapping volunteers who have a Facebook-mentality sense of privacy–minimal–and enough excitement about genomic science that they are willing to lay out their genetic and medical information so any researcher can sift through it for links between genes and traits. “There’s a hope that by making these data public, you can harness crowd-sourcing power in the same way that Wikipedia and YouTube and Google and Linux all emerged from cooperative, distributed efforts” [Boston Globe], said Harvard psychology professor Steven Pinker, who is one of the 10 pioneers.

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October 20th, 2008 Tags: , , , ,
by Eliza Strickland in Health & Medicine | 0 comments | RSS feed | Trackback >

NIH Yanks Genetic Databases From the Web, Citing Privacy Worries


genetic codeA new method to identify an individual’s genetic profile from a larger pool of genetic data could be a boon for forensic science, but is causing headaches for the National Institutes of Health. In response to a study describing the technique, the NIH quickly removed several publicly available databases of DNA information drawn from medical studies, citing concerns that patients’ privacy could be threatened.

The new type of DNA analysis could only identify an individual if that person’s genetic profile was already known. Such a confirmation could reveal patients’ participation in a study about a specific medical condition, denying them their presumed confidentiality, experts said [Los Angeles Times]. NIH officials say they took down the databases, which contained genetic data from more than 60,000 patients, as a precautionary measure, and say it’s unlikely that the privacy of any of those patients has been violated.

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September 2nd, 2008 Tags: , , ,
by Eliza Strickland in Health & Medicine | 0 comments | RSS feed | Trackback >