Comments on: Your genes, your rights – FDA's Jeffrey Shuren misleading testimony under oath

By: The right to know your own DNA

The right to know your own DNA — Mon, 14 Mar 2011 15:07:01 +0000

[...] committee: It's very difficult to protect the public from itself and it's desire to be healthy. Your genes, your rights – FDA’s Jeffrey Shuren misleading testimony under oath | Gene Ex… __________________ My posts generally don't contain medical or legal advice, if you have a [...]

By: John Howard

John Howard — Mon, 14 Mar 2011 05:33:35 +0000

Well, when a twin has a child, we don’t say that both twins had a child, we keep track of which twin had each of their babies and they are the parent of their own babies. But if someone used your genome to reproduce with, they would say that it was your genome, it’d be your baby, the person would say “who is my dad?” and it’d be you, not some hypothetical twin.

And speaking of hypothetical twins, if you had a twin, would you ask him for permission to put your and his DNA in the public domain?

By: Think twins! | Gene Expression | Discover Magazine

Think twins! | Gene Expression | Discover Magazine — Mon, 14 Mar 2011 04:40:46 +0000

[...] the comments below, John Howard asks in relation to me releasing my genotype into the public domain: “I’m curious if this [...]

By: Razib Khan

Razib Khan — Mon, 14 Mar 2011 04:26:36 +0000

I’m curious if this means you give permission to be cloned, or for someone to reproduce with you, by making gametes from your genome. Do you think other people have the right to do that?

*shrug* i guess? i mean twins don’t have the right to control their twin’s reproduction do they?

By: HK

HK — Mon, 14 Mar 2011 02:49:43 +0000

John Howard: science fiction is not a good basis for science policy.

Also you don’t have to want to make your genome public domain to want to keep the FDA’s grubby hands off it.

By: John Howard

John Howard — Mon, 14 Mar 2011 01:57:53 +0000

“I am going to release my own 23andMe sequence into the public domain soon. ”

I’m curious if this means you give permission to be cloned, or for someone to reproduce with you, by making gametes from your genome. Do you think other people have the right to do that?

By: Stopping YOU from Accessing YOUR Genetic Data

Stopping YOU from Accessing YOUR Genetic Data — Sun, 13 Mar 2011 17:00:11 +0000

[...] The FDA is attempting to ban you accessing your own genetic data! [...]

By: Links – March 12, 2011 « C6-H12-O6

Links – March 12, 2011 « C6-H12-O6 — Sun, 13 Mar 2011 15:27:18 +0000

[...] Your genes, your rights. Razib wrote an impassioned blog post condemning the FDA and AMA’s attempts to block direct-to-consumer genetic testing (see also follow-ups here and here). There’s a link round-up with other people’s blog posts on the topic here at My Genome, My Right. Obviously I believe that it is an individual’s right to have direct, uninhibited access to their genetic information if they decide they want to know what’s in it, but I also understand that complications will arise as the price of genotyping continues to drop. People without a background in biology may decide to partake in DTC genetic testing as it gets cheaper, and the companies providing the service need to make sure the consumers have the appropriate framework for understanding and interpreting the results. I am not against regulating the industry, but I do think it is absurd to require a physician’s prescription to receive the service or require a physician to interpret genetic information. [Edit: I was talking to my grandpa about this today and he said that the government won't be able to stop it because the industry will just move overseas. Others have expressed the same sentiment, but it would still be a huge step backwards.] [...]

By: Why Is The FDA Moving To Ban You From Freely Accessing Your Genomic Data? |

Why Is The FDA Moving To Ban You From Freely Accessing Your Genomic Data? | — Sun, 13 Mar 2011 05:31:57 +0000

[...] FDA official has been caught on video in a lie under oath making claims about the research being done by genetic testing companies. The FDA is seeking to [...]

By: Myriad Genetics May Influence How the FDA Sniffs About Genetic Tests « Pasco Phronesis

Sun, 13 Mar 2011 04:54:53 +0000

[...] Administration (FDA) is taking towards regulating home genetic tests, I happened across this rather strenuous objection to the idea from Razib Khan at Gene Expression. He’s quite concerned about being denied access to his [...]

By: Maryland says, no DTC genetic testing for you « Frank Hecker

Maryland says, no DTC genetic testing for you « Frank Hecker — Sat, 12 Mar 2011 23:30:36 +0000

[...] hiatus to discuss direct-to-consumer (or DTC) genetic testing, an issue that has recently become a cause célèbre (at least among the relatively small group of people concerned about it) and that I think deserves [...]

By: Andrew

Andrew — Sat, 12 Mar 2011 23:29:20 +0000

“The interpretation is the thing that matters most, from a medical perspective, and when a doctor provides an interpretation, it is based on years of training and clinical knowledge . . .”

No offense, but this sounds pretty archaic, especially when dealing with the technologically advanced subject at hand. Why rely on MD’s to correctly memorize what is needed for “interpretation” when computers are so good at memorizing, correlating and providing output. Is the answer more memorization by sub-specialists or is it just having access to a good computer program? Human-computer chess matches, for example, showed the best computer systems overtaking human chess champions in the late 1990s and computer power has progressed from there.

By: DTC, FDA, regulation, etc. | Gene Expression | Discover Magazine

DTC, FDA, regulation, etc. | Gene Expression | Discover Magazine — Sat, 12 Mar 2011 22:41:23 +0000

[...] been a few days since my post on the FDA DTC hearings was linked around the blogosphere, and generated some incredibly well [...]

By: Saturday Stuff – March 12th, 2011 | Gene Expression | Discover Magazine

Sat, 12 Mar 2011 21:28:31 +0000

[...] Comment of the week, in response to “Your genes, your rights – FDA’s Jeffrey Shuren misleading testimony under oath”, there were many good comments. But I’ll highlight this one from Dan: Furthermore, all CLIA [...]

By: Raymond McCauley

Raymond McCauley — Sat, 12 Mar 2011 21:21:17 +0000

If you haven’t already, please check out the Personal Access to Genomic Information petition.

By: Why Is The FDA Moving To Ban You From Freely Accessing Your Genomic Data? « Citizen Renegade

Sat, 12 Mar 2011 02:19:05 +0000

[...] FDA official has been caught on video in a lie under oath making claims about the research being done by genetic testing companies. The FDA is seeking to [...]

By: Clark

Clark — Fri, 11 Mar 2011 23:15:29 +0000

You should do a post over at Secular Right about the problem of guilds in America. The medical guild and what it attempts to limit is but one example. Of course one problem is that the congress keeps building up regulations that end up supporting this carefully guarded monopoly.

Consider, for example, the proposed regulation that would make pseudo-ephederine obtainable only by prescription. This would be a boon for doctors. With my insurance they’d get to collect $25 plus whatever else my insurance pays them just for me to be able to go pay $12 to get some cold medicine.

By: Caledonian

Caledonian — Fri, 11 Mar 2011 21:30:22 +0000

Libertarians _are_ crazy.

Everyone‘s crazy, hadn’t you noticed?

It’s nice to see that people will object to abject idiocy, even if it takes a specific threat to their favorite sacred cow to do it.

By: Glenn Allen Nolen

Glenn Allen Nolen — Fri, 11 Mar 2011 21:19:55 +0000

No, but I really enjoy cold weather. I live in Texas and the heat is unbearable at times for me.

By: Razib Khan

Razib Khan — Fri, 11 Mar 2011 21:09:27 +0000

were you unfrozen from ice by chance glenn?